Our appointment last week was indeed confirmation of the devastating news we had already been told. Luckily we went into this appointment prepared to hear this, however it still was not easy to hear, and each day it is hard to accept. With everything that has happened over the past year, I have tried to convince myself that there is good that comes from everything, regardless of how hard you may have to look to find that good. My mom’s accident was so very tragic, and the months that followed were so very difficult, but through that tragedy I was able to meet and develop some very special friendships that would help me through that difficult time. I will forever treasure those friendships and the peace and comfort they brought me during such a difficult time in my life. When we found out shortly after my mom’s death that were would be having another baby, I was so happy, I felt like this baby would have such a huge part of my mom with it, I was ecstatic!! To then be faced with the news that we would be losing our precious little baby, seemed almost too much to bear. How do you possible find the good in a situation such as that. There is no way there could possibly be any good to find in such sadness. One thing we have been told at each and every appointment we have had is what a good strong heart our little guy has. I remember telling Jon after one appointment that was great to hear, but didn’t really do much good if the rest of his body wasn’t going to be strong enough for him to survive. And one day it hit me…if we weren’t going to be able to have our little baby in our lives, maybe he would be able to help another family to have their baby in their lives. Maybe there could be some good in all of this. I talked to Jon about my idea of possibly donating his heart to help save another little baby. He was in agreement and said almost word for word what I had been feeling. At our latest appointment we addressed the desire to be able to donate our son’s heart to help save another. We weren’t given a definite answer as it is a very tricky process, and definitely some uncertainty due to our son having a fatal condition, but were left with a bit of hope that it could be possible. This has now become my hope and prayer. I want nothing more than to be able to bring our baby home with us, but after having been faced with and experiencing the heartbreaking news of being told your baby isn’t going to survive, I truly know what that feels like, and if there is any way we can help another family from going down that same road, I would love nothing more then to be able to do just that.

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