How can this be?

On Jan 3rd we had a routine doctors appointment. We knew we would be having an ultrasound and couldn’t wait to see our baby again!! We were excited when we found out it was another boy, but we also found out that they had some concerns. My babies have always had a history of not cooperating during ultrasounds, so the fact that he was squished up against my cervix and not giving us a good view didn’t come as a surprise. The technician wasn’t able to tell if there might be something wrong with his legs or if it was just the positioning and angle. It was decided it would be best to set up an appointment with maternal fetal medicine to have a more in-depth ultrasound done. Of course we were hoping they could get us in that very day or the next day at the latest…no such luck. We were scheduled 2 weeks out. 
We went into this appointment expecting to hear there might be some issues with our sweet baby, what we didn’t expect to hear was the word “lethal”. We were told that our little guy has a form of lethal skeletal dysplasia, called osteogenesis imperfecta. There are 5 different types, 1-5. Unfortunately the type our lil guy has is type two which is the most severe. The doctor told us that he will have less than a 1% chance survival rate at birth. Almost all infants die at birth or shortly after due to respiratory problems, if not prior to birth. Clearly we hadn’t heard what she said correctly. There was no way we were being told that our baby isn’t going to live. She went on to explain that unfortunately there is nothing that can be done to fix it. 
We have been given two choices…the first choice being to deliver him now, the second is to carry him full term. Neither one is an easy choice, and sadly neither one has a good outcome. We feel strongly about going full term, but struggle with knowing if this is the right thing to do. We most definitely want the least amount of suffering for our baby, but we also want to hold on to any bit of hope and possibility of a positive outcome. Obviously our decisions will be based on how things go week to week and month to month. We have also been told that it is very possible for our baby’s heartbeat to stop beating in utero. We are doing our best to stay strong and remain hopeful. If you could find a spot in your prayers for our family and baby at this time, words could not express how thankful we would be. ❤️❤️❤️